ADVANCE: Accelerating Data Value across a National Community Health Center Network
The ADVANCE Clinical Data Research Network (CDRN)
is led by OCHIN in partnership with Health Choice Network (HCN)
and Fenway Health
. The goal of ADVANCE is to build and maintain a “community laboratory” of Federally Qualified Health Centers (FQHCs) serving safety net patients, including the uninsured, the under-insured, undocumented immigrants, and other vulnerable populations.
The ADVANCE Research Data Warehouse (RDW) maintains data on over two million patients and is the nation’s most comprehensive dataset on care and health outcomes in safety net patients. These patients are often underrepresented in claims-based datasets and academic hospital-based research studies. ADVANCE is one of 13 CDRNs participating in the Patient Centered Outcomes Research Institute’s (PCORI)
distributed research network, called PCORnet
. The goal of PCORnet is to create a national network of representative data for conducting comparative effectiveness and clinical outcomes research.
ADVANCE partners include OCHIN, Health Choice Network
, Fenway Health
, Kaiser Permanente Center for Health Research
, Legacy Health
, and Oregon Health and Science University
. Data include electronic health record data from over 100 health systems, ambulatory and hospital claims data, community data on social determinants of health (e.g., poverty, pollution), and patient reported outcomes.
ADVANCE contains health records and claims data from more than 120 community health center (CHC) systems, as well as neighborhood-level geospatial data from the Robert Graham Center on environmental, social, and economic factors that impact health. For further details regarding availability in our ADVANCE Research Data Warehouse, please visit the ADVANCE site.
It is anticipated that ADVANCE will result in greatly expanded capacity to conduct comparative effectiveness research in the safety net population, and allow for collaboration with diverse partners on such efforts. It will also yield the nation’s largest database on safety net patient care and outcomes. Research conducted in this dataset has the potential to address myriad questions about improving care quality and outcomes among our nation’s most vulnerable patients.
The Voice of the Patient
Through our patient engagement panel, ADVANCE aims to empower patients to be involved in the research design and implementation process. ADVANCE partners regularly vet research proposals and materials with patients to design patient-centered studies.
Committed to Patient Privacy and Data Security
Because ADVANCE is bringing together data on several million patients, it is critical that the data are protected and kept confidential. ADVANCE is committed to assuring the privacy, security, and confidentiality of health data and ensuring that the data are used appropriately. ADVANCE protects patient confidentiality and minimizes risks by following HIPAA privacy practices, enforcing data use and sharing policies, having all research activities reviewed by an Institutional Review Board, and securing the physical network and data storage. In addition, all patients receive a notice of privacy practices to inform them about how their data are used by participating community health centers for research purposes.